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CyberKnife® Patient Support Group > Ask the Doctors > AVM > avm on right occipital lobe  Forum Quick Jump
 
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val
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Date Joined Dec 2005
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  		   Posted 12/4/2005 3:30 PM (GMT -8)    Quote This PostAlert An Admin About This Post.
i have a avm on my right occipital and would like to hear from anyone that has had gamma knife surgery and what side effects if any they are having? And wondering about long term effects of the radiation.
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radsrus
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Date Joined Jul 2004
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  		   Posted 12/4/2005 4:43 PM (GMT -8)    Quote This PostAlert An Admin About This Post.
Hopefuly someone who has been treated will answer your post. If you want medical information, we would need to have much more information regarding specifics of location, size, etc.

Clinton A. Medbery, III, M.D.
St. Anthony Hospital Cyberknife Center
(405) 272-7311
buddy@swrads.org or cmedbery@coxinet.net

Clinton A. Medbery, III, M.D.
Southwest Radiation Oncology
1011 N. Dewey Ave.
Oklahoma City, OK 73102

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Kira
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Date Joined Mar 2005
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  		   Posted 2/12/2006 7:48 PM (GMT -8)    Quote This PostAlert An Admin About This Post.
I also have an AVM on my right occipital lobe. I had stereotactic radiosurgery in March 2005. I did lose a little bit of hair and now have a weird tingling in my head on a regular basis. I also hear my heartbeat almost constantly in both ears (I think it’s called a bruit). I also have a dull ache in my left eye. My AVM has dramatically shrunk according to my last MRI. My AVM was subsequently found after becoming quite lightheaded at work. I never had any symptoms of an AVM. It seems that I have picked up some symptoms after haveing the surgery.

I decided not to go with the Gamma knife because I would have been one of the first patients to use it. I didn’t want to feel like an experiment since AVM’s are so rare.
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Kira
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  		   Posted 2/12/2006 8:06 PM (GMT -8)    Quote This PostAlert An Admin About This Post.
I meant Cyber Knife not Gamma.
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radsrus
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  		   Posted 2/13/2006 3:15 AM (GMT -8)    Quote This PostAlert An Admin About This Post.
Most people who have radiosurgery will do well over the long run from the standpoint of symptoms.

Clinton A. Medbery, III, M.D.
St. Anthony Hospital Cyberknife Center
(405) 272-7311
buddy@swrads.org or cmedbery@coxinet.net

Clinton A. Medbery, III, M.D.
Southwest Radiation Oncology
1011 N. Dewey Ave.
Oklahoma City, OK 73102

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Kira
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Date Joined Mar 2005
Total Posts : 4
  		   Posted 3/31/2006 7:15 PM (GMT -8)    Quote This PostAlert An Admin About This Post.
I was diagnosed and treated in Marrch 2005 for aan AVM on the right occipital lobe. I thought everything was fine but 4 weeks ago I got a severe headache and was hsospitalized for 4 days. Apparently, I now have fluid over the dead blood vessels as well as radionecrosis. I am being treated with steroids that cause insomniia, a moon face, acne, muscle weakness etc. I also go into a hyperbaric oxygen chamber for 2 hours 5 days per week for 20 sessions.

Has anyone ever heard of this?????????

On a good note,my Dr. says the AVM has no further risk of bleedeing. But now I have to worry about this.
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radsrus
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Date Joined Jul 2004
Total Posts : 1346
  		   Posted 4/1/2006 5:07 AM (GMT -8)    Quote This PostAlert An Admin About This Post.
Radionecrosis is a known complication, but fortunately is not that common. Risk factors include larger AVM size, deep-seated location, and higher radiation dose. However, the most catastrophic complicatioin in most cases is re-bleeding because of failure to control the AVM. In most cases, AVM’s are treated with radiosurgery because surgery is felt to carry an even higher risk. Overall, about 7-15% of AVM patients will have some sort of neurologic complication. There is no risk-free to handle these problems, but for patients where open surgery is not a good option radiosurgery still represents the best approach.

Clinton A. Medbery, III, M.D.
St. Anthony Hospital Cyberknife Center
(405) 272-7311
buddy@swrads.org or cmedbery@coxinet.net

Clinton A. Medbery, III, M.D.
Southwest Radiation Oncology
1011 N. Dewey Ave.
Oklahoma City, OK 73102

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