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CyberKnife® Patient Support Group > Ask the Doctors > Spine > intramedullary spinal cord tumor with syrnix component  Forum Quick Jump
 
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tj
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   Posted 8/6/2007 9:59 AM (GMT -8)    Quote This PostAlert An Admin About This Post.
After the past 2 years (knowing for 2 years) about a mass in the spinal cord intra dural, I have met with neurosurgeons, CK etc…. so the neruo says operating would be fine since there is a relatively clear plane to cut… but risk is high of numbness, bowl control loss etc. CK states I am a candidate for CK but should listen to Neuro…. So here is my question…. If I go under the real knife… I am out of work for 3 – 4 weeks, I run a high risk of multiple problems etc… CK single or fractional I can get on with life etc…. So I know the goal of CK is to stop the growth of the tumor, CAN it or WILL it reduce or get rid of (over a long period of time I am sure) the mass??? I am 28 no real neurological deficit as of now.. a little numbness and weird "ism’s" in my left leg, and what appears to be IBS but neuro and regular doc states its because of the mass…. I hope any of that makes sense… I really need to know if the CK is worth the time and money if it will have any effect besides just stopping growth… If there is hope or chance that it will do more then I will go with that and leave hope for hope 😉 this is in the thoracic region BTW.
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radsrus
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   Posted 8/6/2007 12:38 PM (GMT -8)    Quote This PostAlert An Admin About This Post.
What do they think the mass is?


Clinton A. Medbery, III, M.D.
St. Anthony Hospital Cyberknife Center
(405) 272-7311
buddy@swrads.org or cmedbery@coxinet.net

Clinton A. Medbery, III, M.D.
Southwest Radiation Oncology
1011 N. Dewey Ave.
Oklahoma City, OK 73102

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tj
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   Posted 8/6/2007 2:11 PM (GMT -8)    Quote This PostAlert An Admin About This Post.
well the neuro thinks its a scwanomma (sp)
CK center did not say…..
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radsrus
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   Posted 8/6/2007 4:23 PM (GMT -8)    Quote This PostAlert An Admin About This Post.
I would have the scans reviewed by Stanford. They probably have the most experience with these tumors actually in the cord. They also have excellent neurosurgical skills there.

I don’t mean to sound like yoru local CK center is not up to this, but these are rare and very few centers have significant experience. Treatment is not easy. We are one of the more experienced centers, and we send these to Stanford.


Clinton A. Medbery, III, M.D.
St. Anthony Hospital Cyberknife Center
(405) 272-7311
buddy@swrads.org or cmedbery@coxinet.net

Clinton A. Medbery, III, M.D.
Southwest Radiation Oncology
1011 N. Dewey Ave.
Oklahoma City, OK 73102

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tj
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   Posted 8/7/2007 11:54 AM (GMT -8)    Quote This PostAlert An Admin About This Post.
Well I spoke to the Admin at Stanford…. So I need to get my films etc together plus a check for $300.00 for him to review it… now what kind of review are we talking about…. Do you think he is going to call me and say yes you should do cyberknife or you should do surgery and thats it??? I mean I already know I can do both but does not answer my question….. Should I pa the 300.00 for im to look at this??? I mean I just want to know the general info of what expected outcome is… and no one on these forums says anything directly… its all these wishy washy answers that create more questions without answering the first one!!!
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radsrus
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   Posted 8/7/2007 1:01 PM (GMT -8)    Quote This PostAlert An Admin About This Post.
YOu said that you have already been apprised of the risks of both types of treatments. Stanford has reported on ten patients treated with no complications of significance treated with radiosurgery. Is that the type of information you wanted? I can’t comment on our experience since we have none, and I can’t comment on stanford’s experience except the small amount published some time ago since I don’t have access to their data. And yes, you would be paying for the opinion of a very experienced team. If that is not worth $300, then don’t do it.


Clinton A. Medbery, III, M.D.
St. Anthony Hospital Cyberknife Center
(405) 272-7311
buddy@swrads.org or cmedbery@coxinet.net

Clinton A. Medbery, III, M.D.
Southwest Radiation Oncology
1011 N. Dewey Ave.
Oklahoma City, OK 73102

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tj
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   Posted 8/7/2007 1:11 PM (GMT -8)    Quote This PostAlert An Admin About This Post.
Its not the knowledge of is it ok to do via CK its the knowledge of what happens to the mass after CK… I know it stops growing… does it eventually dissapate what… or is it just a dead mass now surrounded by scar tissue that still needs to be removed and makes the cyberknife kind of pointless to do first if its dead but still needs to be removed…???
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radsrus
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   Posted 8/7/2007 3:18 PM (GMT -8)    Quote This PostAlert An Admin About This Post.
If it is dead, it does not need to be removed. They usually shrink somewhat, but don’t usually go away entirely.

By the way, schwannoma is not the most common tumor type in the intramedullary world. Astrocytomas and ependymomas are more common.


Clinton A. Medbery, III, M.D.
St. Anthony Hospital Cyberknife Center
(405) 272-7311
buddy@swrads.org or cmedbery@coxinet.net

Clinton A. Medbery, III, M.D.
Southwest Radiation Oncology
1011 N. Dewey Ave.
Oklahoma City, OK 73102

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tj
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   Posted 8/7/2007 3:34 PM (GMT -8)    Quote This PostAlert An Admin About This Post.
Well so many people have predicted it to be every kind under the sun…. the problem is that it has a syrnix component so there is fluid building above it… if not removed then how to restore flow of spinal fluid back up and down the inside canal of the cord???
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radsrus
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   Posted 8/7/2007 3:51 PM (GMT -8)    Quote This PostAlert An Admin About This Post.
That may be a reason to do surgery. I stil suggest just getting the best opinions you can from the best doctors you can who can treat you either way. Neither Dr. Spunberg nor I is a surgeon.


Clinton A. Medbery, III, M.D.
St. Anthony Hospital Cyberknife Center
(405) 272-7311
buddy@swrads.org or cmedbery@coxinet.net

Clinton A. Medbery, III, M.D.
Southwest Radiation Oncology
1011 N. Dewey Ave.
Oklahoma City, OK 73102

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Steven Chang, MD
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   Posted 8/7/2007 8:17 PM (GMT -8)    Quote This PostAlert An Admin About This Post.
tj,

I would be interested in seeing the films, because it is frankly unusual for a spinal schwannoma to cause a syrinx, at least in my experience. The probable pathology based on the MRI imaging would determine the recommendation. As a neurosurgeon whose practice is half cyberknife, half conventional neurosurgery, I could weigh in on the pros and cons of both options after seeing the images. I am not sure who you talked to at Stanford, but none of the adminstrative assistants discussed your case with me. They may have spoken with my partner John Adler, MD.

Steven Chang, MD
Departement of Neurosurgery
300 Pasteur Dr., room R-225
Stanford, CA 94305


Steven D. Chang, MD
Associate Professor
Department of Neurosurgery
Stanford University School of Medicine
300 Pasteur Dr., Room R-225
Stanford, CA 94305
Tel (650)723-5573
Fax (650)725-5032

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tj
Registered Member

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Date Joined Aug 2007
Total Posts : 6
 
   Posted 8/8/2007 4:20 AM (GMT -8)    Quote This PostAlert An Admin About This Post.
No the lady who answered the phone did not speak to anyone…… I explained the situation and what not, and she told me to send my films , reports, etc along with the 300.00 so that DR Adler can review them and could get back to me…. She never placed me on hold or anything…. OK so I need to get the 300.00 and the cd’s together and get them out… may take me a few weeks but I will get them out to you soon…… Thanks I very much appreciate it…..
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