Topics discussed:
1) New meeting place at Stanford:
a. Consensus of those in attendance was that the location at the
Stanford Cancer Center was very good and that meetings should
continue to be held there. The board has voted to reimburse the
$5 parking fee for those that attend.
2)
Donald shared that he had been asked to be a guest speaker
at a Doctor’s
Symposium for prostate cancer representing the patient experience
3) New officers and board members were nominated and elected
from those in attendance.
a. John is now President replacing Donald
b. Valorie will stay on as Vice President for another
term
c. Patti is assuming the responsibilities of Secretary
d. The Treasurer position remains open and Mark will
continue in that role and handle CPSG financial matters until
the board
can discuss
e. Esther and Christina are At Large members of
the board
Congratulations to all the new officers and board members and
thanks to Donald and Mark for their efforts over the past two years.
4)
Patient Stories: Pat and Christina shared updates on
their Cyberknife experiences
5) Valorie shared updates on the web site which continues to
be a wonderful support tool for patients. There are a number
of new
links as well as increased support by several doctors on the
message board which makes the CPSG site very unique.
6) General Discussion
a. Impact of radiation therapy long term – how can we get
some more definitive studies to share with other patients
b. What is the impact on gaining health insurance after treatment
with the Cyberknife in terms of a pre-existing condition. Patti
was going to research
c. Recognize the bias of doctors- patients have the responsibility
to take charge of their health care decisions
d. Importance of people who have had radiation treatment to
drink water to cleanse their system was discussed by Bob
The
next meeting will be at the Stanford Cancer Center, 875 Blake
Wilbur Dr. rooms 2103 and 2104 on April 2, 2005 from 10-12. The
board will meet in those rooms from 9-10 am. We hope to see you
there.
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