Neuroma Patient Archive –
This site contains a wonderful collection of Acoustic
Neuroma patient stories from every treatment option
as well as many useful links.
Cystic Carcinoma Organization International – “ACCOI” is
an all-volunteer nonprofit organization formed to further
research and awareness of this rare cancer.
Brain Tumor Association – An
independent, global organization making an impact by
funding research and providing the information patients
need to make educated decisions about their health
Cancer Society – National
organization fighting cancer of all types which provides
links to information as well as support.
Venus Malformations of the Brain and Spine –
Information about AVM and treatment options.
/ The Toronto Brain Vascular Malformation Study Group–
Great source of information , questions and answers for
those suffering from AVM’s. Includes a descriptive video
clip of an AVM.
International – A privately funded Biotech group
that focuses on providing access to the latest in targeted
and diagnostics in:stem cell therapy, immunotherapy, and cancer
Digest– Breakthrough Digest delivers the latest medical
information about disease research and new medications
entering the marketplace.
CenterWatch – Clinical trials listing service.
Trials – information for current clinical trials being
Angel Network – Free air transportation for
cancer patients traveling to treatment.
U.S. Food and Drug Administration, center for drug evaluation
Nicely designed and easy to read site to provide information
on all general health questions and conditions.
Radiosurgery Support Association – Site provides
useful information on radiosurgery in general and answers
many common questions.
Hopkins Radiosurgery – An
excellent web site from one of the top medical centers
which provides information about radiosurgery and a
variety of neurosurgical conditions. It also provides
good risk vs outcome comparisons between surgical and
Brain Tumor Foundation – An
excellent web site with a lot of information.
Cancer Institute – National organizations that offer services
to people with cancer and their families.
Library of Medicine – Link provides access to one
of the world’s largest data bases on all medical conditions.
Institute of Neurological Disorders and Stroke –
NINDS is part of the National Institutes of Health.
Organization of Rare Disorders – Data base on rare
Rehabilitation Information Center – Disability
and rehabilitation information center.
Meds – This site is designed to provide information
about patient assistance programs which provide no cost
prescription medications to eligible participants.
on Call – Official web site of the American Association
Cancer Action Network – PanCAN
is a national nonprofit organization that works to focus
attention on the need to find a cure
for pancreatic cancer by providing advocacy, awareness
and education to patients and professionals.
Inform – Web site that offers free access to medical
studies pertaining to cancer, heart disease and diabetes.
A service of the National Library of Medicine, PubMed includes
links to many sites providing full text articles and other
Society of North America
Answers – The American Society for Therapeutic Radiology
and Oncology has created this Web site to explain how
radiation therapy is used to safely and effectively treat
Security Disability Process – Link to the social
security administration with specific information on
the disability claim process
Arteriovenous Malformations– Louisiana State University
Medical Center and Ochsner Clinic. Shows case studies
for different types of AVM with downloadable AVM graphics.
Health Library – Consumer health information
library that provides scientifically-based medical information
to help people make informed decision about their health
and health care.
Trials – Clinical trials and treatments for
brain tumors maintained by the Musella Foundation.
You Should Know About AVMS – Clinical trials
and treatments for brain tumors maintained by the Musella